Vol. 3 No. 1 (2020): American Journal of Psychiatric Research and Reviews

Education of Healthcare Professionals on an Integrated Care Pathway in order to Standardize Practice and Improve Outcomes for Individuals with Intellectual and Developmental Disability (IDD) who engage in Self-Injurious Behavior (SIB)

Regina Gentlesk Green
Stockton University Asst. Professor Assurance Behavioral Health- Training & Community Outreach


  • SIB; IDD, Intellectual and Developmental Disability, Self-Injurious Behavior

How to Cite

Regina Gentlesk Green. (2020). Education of Healthcare Professionals on an Integrated Care Pathway in order to Standardize Practice and Improve Outcomes for Individuals with Intellectual and Developmental Disability (IDD) who engage in Self-Injurious Behavior (SIB). American Journal of Psychiatric Research and Reviews, 3(1), 24. https://doi.org/10.28933/ajprr-2020-10-1505


This paper addresses the lack of knowledge and lack of standardization for treating individuals who engage in self-injurious behavior (SIB) to the head. An evidence-based integrated clinical care pathway is described that was created for health care professionals treating individuals with intellectual and developmental disability (IDD) who engage in frequent and/or significant SIB. It is anticipated that this pathway will increase treatment team knowledge of best practices, decrease clinical variation, standardize care, and improve clinical outcomes with this vulnerable population.


  1. Ahmad, F., Roy, A., Brady, S., Belgeonne, S., Dunn, L., & Pitts, J. (2007). Care pathway initiative for people with intellectual disabilities: Impact evaluation. Journal of Nursing Management, 15, 700-702. http://dx.doi.org/10.1111 /j.1365-2934.2006.00734.x
  2. Boyle, C. A., Boulet, S., Schieve, L. A., Cohen, R. A., Blumberg, S. J., Yeargin-Allsopp, M., Visser, S., and Kogan, M. D. (2011, June 1). Trends in the prevalence of developmental disabilities in US children, 1997-2008. Pediatrics, 127, 1034-1042.http://dx.doi.org/
  3. Centers for Disease Control website. (2020). www.cdc.gov/ncbddd/developmentaldisabilities/
  4. Cervasio, K. (2013). Inclusion of developmental disability nursing content into undergraduate nursing education: A renewed call for pediatric curricula reform. International Journal of Nursing in Intellectual Developmental Disabilities, 6(1), 1-13.
  5. Cullen, L., Titler, M., & Rempel, G. (2011). An educational program promoting evidence-based practice. Western Journal of Nursing Research, 33, 345-364. http://dx.doi.org/10.1177/ 0193 94 5910379218
  6. Currie, L., & Harvey, G. (1998, April 15). Care pathways development and implementation. Nursing Standard, 12, 35-38. http://dx.doi.org/ 10.7748/ns1998.
  7. Dontje, K. J. (2007). Evidence-based practice: Understanding the process. Retrieved from www.medscape.com
  8. Doody, C. M., & Doody, O. (2011). Introducing evidence into nursing practice: Using the Iowa model. British Journal of Nursing, 20, 661-664. Retrieved from PubMed.gov
  9. Evans-Lacko, S. E., Jarrett, M., McCrone, P., & Thornicroft, G. (2008). Clinical pathways in psy-chiatry. The British Journal of Psychiatry, 193, 4-5. http://dx.doi.org/10.1192/bjp.bp.107.048296
  10. Gardner, M. R. (2012). Preparing nurses to care for people with developmental disabilities. The Nursing Clinics of North America, 47, 517-527.
  11. a. http://dx.doi.org/10.1016/j.cnur.2012.07.0100029-6465/12/$
  12. Hahn, J. E. (2009). Evidence-based nursing practice with persons with intellectual and de-velopmental disabilities. Retrieved from https:// www.ddna.org
  13. Johnson, N. L., Lashley, J., Stonek, A. V., & Bonjour, A. (2012). Children with developmental disabilities at a pediatric hospital: Staff education to prevent and manage challenging behaviors. Journal of Pediatric Nursing, 27, 742-749.http://dx.doi.org/10.1016/j.pedn.2012.02.009
  14. Lakdawala, L. (2011). Creating a safer periopera-tive environment with an obstructive sleep apnea screening tool. Journal of PeriAnesthesia Nursing, 26, 15-24.http://dx.doi.org/ 10.1016/j.jopan.2010.10.004
  15. Lock, J. (1999). How clinical pathways can be useful: An example of a clinical pathway for the treatment of anorexia nervosa in adolescents. Clinical Child Psychology and Psychiatry, 4, 331-340. http://dx.doi.org/10.1177/135910459 9004003004
  16. Murphy, G. (1999). Self-Injurious Behaviour: What do we know and where are we going? Tizard Learning Disability Review, 4, 5–11.
  17. Norris, A. C., & Briggs, J. S. (1999). Care path-ways and the information for health strategy. Health Informatics Journal, 5, 209-212.http://dx.doi.org/10.1177/146045829900500407
  18. Oliver, C., Petty, J., Ruddick, L., Baca-rese-Hamilton, M. (2012). The association be-tween repetitive, self-Injurious and aggressive behavior in children with severe intellectual disa-bility. Journal of Autism and Developmental Disorders, 42(6), 910–919.
  19. Powell, H., & Kwiatek, E. (2006). Integrated care pathways in intellectual disability nursing. In B. Gates (Ed.), Care planning and delivery in intel-lectual disability nursing (pp. 21-52). Oxford, United Kingdom: Blackwell.
  20. Sisk, R. A., Motley, W. W., Yang, M. B., & West, C. E. (2013). Surgical outcomes following repair of traumatic retinal detachments in cognitively impaired adolescents with self-injurious behavior. Journal of Pediatric Ophthalmology & Strabismus, 50, 20-25.http://dx.doi.org/1 0.3928/01 913913-20121002-01
  21. Symons, F. J., & Thompson, T. (1997). Self-injurious behaviour and body site preference. Journal of Intellectual Disability Research, 41, 456-468. Retrieved from www.pubmed.gov
  22. Symons, F.J. (2011). Neuroscience and Bi-obehavioral Reviews, 35(5),1266–1274. Re-trieved from www.pubmed.gov
  23. Taylor, L., Oliver, C., & Murphy, G. (2011). The chronicity of self-injurious behavior: A long term follow-up of a total population study. Journal of Applied Research in Intellectual Disability, 25, 107-117